Yikes. In fact, what a week. Yesterday we lost (he went to another job) our Occupational Therapist--bummer, since we are having bad luck with OTs for some reason. And then today.
Dakin had a GI appointment rescheduled on Monday for today. I almost canceled it yesterday since I had a bad feeling about it, and now I know why. Our day nurse got here at 7, 75 minutes before we had to leave for Dallas. We told her we had to go (she hadn't known--we didn't even know until Monday). So she puttered around for a few mintues, drew Dakin's morning meds, and then informed me she wouldn't be going. The conversation went a little like this:
"Personal reasons. I'll let the office talk to you about it."
"Um, if Dakin had been coughing up blood all night and we had had to go to vent clinic, would you not be going?"
"It just is."
"If I cancel this appointment he can't see the GI doc until April."
"I'm really sorry."
"Were you not planning on working all day?"
"No, I was planning on working at home (our house) all day."
It went on like this for a bit, and she ended up saying, "I think it would be best if I left." I'm thinking in my head, "Yeah, better for you. I'm going to start yelling loudly in a minute."
So she left. Daddy had to take the day off work so we could go--Dakin cannot be transported without 2 people. Needless to say, I'm pretty irate and the agency has fired her. What on earth?!?!? That's the whole point of having these nurses here during the day. Anyway. She is evidently going to have to face a peer review and get some sort of nurse slap on the wrist.
Thing #2: When we got to the hospital, I discovered I was MISSING A SHOE. Yeah. One of my shoes was gone. I guess it slipped off when I got in the back seat with Dakin (I ride with him barefoot since there's so much stuff back there with us it's easier). Fortunately, Daddy had a pair of Jordans in the trunk. Too big, but they worked.
Thing #3: We get in the hospital, and they told me the appointment was an hour earlier than they told me it was. I nearly lost it. I think, though, the guy sensed I was about to go nuclear and got me in. The appointment went well--Dr. B is still ok with us not doing the G-tube yet (since Dakin's eating issues are not related to musculature--he's just stubborn.) and said we can come off his tummy meds, thank goodness.
So that was our day. On the bright side, we did have a good time overall. Dakin did great in Physical Therapy today, and it was beautiful outside. I'm feeling optimistic about a wagon ride tomorrow.
Thanks for letting me vent.