Wednesday, January 7, 2009

Ooh-de-la-li, Ooh-de-la-li, Golly, What a Day

Yikes. In fact, what a week. Yesterday we lost (he went to another job) our Occupational Therapist--bummer, since we are having bad luck with OTs for some reason. And then today.

Oh today.

Dakin had a GI appointment rescheduled on Monday for today. I almost canceled it yesterday since I had a bad feeling about it, and now I know why. Our day nurse got here at 7, 75 minutes before we had to leave for Dallas. We told her we had to go (she hadn't known--we didn't even know until Monday). So she puttered around for a few mintues, drew Dakin's morning meds, and then informed me she wouldn't be going. The conversation went a little like this:

"Personal reasons. I'll let the office talk to you about it."
"Um, if Dakin had been coughing up blood all night and we had had to go to vent clinic, would you not be going?"
"That's different."
"It just is."
"If I cancel this appointment he can't see the GI doc until April."
"I'm really sorry."
"Were you not planning on working all day?"
"No, I was planning on working at home (our house) all day."

It went on like this for a bit, and she ended up saying, "I think it would be best if I left." I'm thinking in my head, "Yeah, better for you. I'm going to start yelling loudly in a minute."

So she left. Daddy had to take the day off work so we could go--Dakin cannot be transported without 2 people. Needless to say, I'm pretty irate and the agency has fired her. What on earth?!?!? That's the whole point of having these nurses here during the day. Anyway. She is evidently going to have to face a peer review and get some sort of nurse slap on the wrist.

Thing #2: When we got to the hospital, I discovered I was MISSING A SHOE. Yeah. One of my shoes was gone. I guess it slipped off when I got in the back seat with Dakin (I ride with him barefoot since there's so much stuff back there with us it's easier). Fortunately, Daddy had a pair of Jordans in the trunk. Too big, but they worked.

Thing #3: We get in the hospital, and they told me the appointment was an hour earlier than they told me it was. I nearly lost it. I think, though, the guy sensed I was about to go nuclear and got me in. The appointment went well--Dr. B is still ok with us not doing the G-tube yet (since Dakin's eating issues are not related to musculature--he's just stubborn.) and said we can come off his tummy meds, thank goodness.

So that was our day. On the bright side, we did have a good time overall. Dakin did great in Physical Therapy today, and it was beautiful outside. I'm feeling optimistic about a wagon ride tomorrow.

Thanks for letting me vent.


Stitch 'N Love said...

Poor Momma! Sounds like you did okay though. lol I know that you got to take the bad with the good, but man, that nurse was just awful. If the agency got rid of her, this must have not been the first time.

Hugs from the Six pack clan!

beth said...

Hi honey! Vent away! You certainly deserve to!! Can't believe that nurse..obvioulsy thought she got to call the shots...good ridance to her...and yeah for daddy being able to take the day off to help! Hugs and kisses to you all. Think about you all the time.
Love Aunt Bscilleoeth

Whit, Lindsey, and Jonas said...

What the weird nurse! I don't even know what I would have done with myself if I had to deal with that! I'm so curious to know what the heck was she thinking. I'm so sorry how the rest of the day played out after that.
If it makes you feel a little better we went to the GI doctor yesterday too and I was squirted in the eye with hand sanitizer from across the desk!? Lol. I know not nearly as bad...
Hope you got to ride in your wagon!

SUE said...

Oh, honey What a terrible woman that nurse was!! Thanks for your nice message on my machine. I am glad you got our present!
Hang in there and keep doing what you're doing. Dakin is thriving with you as his mom!!
Aunt Beth sent me your blog so I could see how Dakin was doing and you too of course!!
Love Cousin Susan

Dorie said...

Poor mommy! I can't believe the nurse said it was personal reasons. WHUT? Last time I knew, when you go to a job you stop having personal reasons. Especially since she admitted that she was planning on being there all day, she just didn't want to travel. Good thing she got fired because I was about to fire her for you. I hope you find your shoe. :)

Victoria Strong said...

Oh, boy! What a day. I hope you will get a new nurse soon who you all LOVE. It makes a world of difference. I hope a wagon ride is in your future :)

Anonymous said...

Well, you made it through "one of those days"! I hope you have a couple of uneventful ones, LOL! Glad Dakin did well at his appointment.

Kate said...

Aww Devon, what a day from hell!!! I can't believe the nurse! You did well and held it together!! I hope you are all doing well tonight.

Darren and Jody said...

Hi Devon,

It was weird because the night before you commented on our blog we found yours on Lindsey's. Thank you so much for your kindness. We will also keep up on your blog. Your little boy is such a cutie!
We will keep your family in our prayers.

Love Jody

Nancy said...

Hi Devon,
Beth sent me a link to your blog. I also signed the petition. We all wish the best for you and little Dakin. He is adorable and in our prayers.
Cousin Nancy