Dakin "crashed." Today was the day that we nearly lost him and didn't even know it. Thank heaven that I was able to get in to see the doctor, and that my dear friend Heather took us over there on her way to Wal-Mart. Thank heaven for the Nurse Practitioner who recognized that there was a problem, and took us over to see our usual pediatrician. Thank heaven for the nurse who packed us in her car and drove us to the ER, and for Dr. H (pediatrician) who canceled all his appointments the rest of the day to stay with us until the helicopter came to take us to Dallas. Thank heaven that Daddy was safe coming in to Dallas while Mommy went in the helicopter with Dakin. And thank heaven for all the sweet, amazing nurses and RTs who lovingly cared not only for Dakin, but for Mommy the whole time we were in the PICU, and the wonderful doctors who racked their brains to discover what was wrong.
All in all, thank heaven. I have been telling myself that the first year of something like this must be the worst, so here we are, having survived one whole year of it. Incredible.
8 comments:
Its events like that, that you will never forget. Im so glad he is doing well. Just so you know, and Im sure you do, most SMA kids breath with the tummy muscles, So if you were to try to give him time off his vent, its ok to see his tummy doing most of the work, its the stats you want to keep an eye on, his o2 will let you know he is ok along with his HR. hope you all have a great weekend Sheila
I try to live by the motto: What does not kill me, only makes me stronger. I know that this has been a hard year on you but I also know that you are a much stronger person too! I only wish that I could be closer to you all (aka ya'll) so that I could give you and the guys hugs!
Hi sweeties,
I know this past year has been a terribly hard year. Dakin's sweetness and courage has kept you going, but here are big hugs for Mommy and Daddy for their tremendous faith and courage, too! So glad to hear of his progress and improvements and to see his adorable face!
XOXOXOXOXO
Aunt Beth
Isn't it interesting how our lives become divided into "Before" and "after" from that moment on. I am grateful for all of those people who went far out of their way for you and Dakin that day.
Thank heaven! You must have cherished all 365 days that have passed since then. What a beautiful gift.
Dakin is incredible. I would love to share his story on the kidz blog to allow him to touch many others and spread awareness about SMA. Let me know if you're interested.
God bless!
It's so humbling to know how some people will do anything they can for others and we are truly blessed. Even though this year and maybe others to come, have been hard they are blessings in disguise.
When I first saw the picture, I couldn't believe how much Dakin looked like Jonas when he had his NJ tube in! Their mouths are like identical. Crazy!
i am married to cheryl's nephew (i think y'all "met" through baby center) and she shared your sweet dakin's story with me recently. i just wanted you to know i think and pray for your family often. what an absolutely precious boy you have!
What blessings you have held through this difficult year. Love and prayers for an easier year ahead and many joys for your whole family.
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