We had ventilator clinic yesterday, which entails a long drive to Dallas, a 3-4 hour clinic visit, and the long drive back. An extremely long day, but worth it yesterday, because...wait for it...we get to take Dakin's feeding tube out!!! After telling the nutritionist that save for the last little strike Dakin was on, he's been doing well with table food, she suggested that we give him a trial with it out. So today was our first day with it out, and he's done great--our main concern was that he can't burp and we have to burp him through the tube, but today he's had no gas issues. He's eaten quite a bit, but we need to up his calories a bit more to make up for the nighttime feed through the tube he'll be missing. We'll have to weigh him and call it in every week, but hopefully it'll be out for good! Wish us luck!
ALSO, we get to go to breathing treatments every eight hours instead of six! We're also coming off his tummy and diuretic meds, so all in all we're moving up. They even said that we could try a trach collar trial (Dakin completely off the ventilator for a little bit) next time we go to vent clinic! So all in all a great visit. Yay! Mommy needed a good one!