Well, the NG tube trial has been going pretty well. Some meals he eats like it's going out of style, and then others it's a major fight. That was yesterday--he was NOT digging the idea of eating. He kept getting what we call "balloon belly" and didn't want to finish his food. (He can't burp when he needs to--I'm pretty sure it's part of his condition--and so of course thinks he's full when it's all just air.) But I do think he's getting enough calories, at least I hope so. We'll know on Monday at his weigh-in. The other major obstacle to his eating at the moment is that he's teething AGAIN. A big old molar on the bottom. Ouch!
We got a wagon walk in yesterday since PT had to cancel. Hoping for another today.