We had vent clinic on Tuesday. It went fairly well this time--Dakin's blood gases were a little high, but he had crud in his chest when she was drawing the sample. His chest x-ray looked good, though, and everything else is good. Dr. G (pulmonologist) was going to change Dakin to a larger size trach but decided against it.
The last time we were there we had briefly discussed doing trach collar trials (where Dakin's off the ventilator completely). Now, this was with Dr. C, the other pulmonologist. We brought it up with Dr. G, and he suggested trying him off the vent for 5-10 minutes, and he would come back to see how he was doing. We laughed at that--Dakin panics when he's off the vent at all. Sooo, we took off the vent, and Dakin lasted about 7 seconds. Needless to say, no more trach collar trials. His chest muscles are just not strong enough. This was disappointing, as I was hoping he would be able to come off for at least a little while, but at least at this point it's just not going to happen.
On the bright side, he is doing great otherwise. Despite not doing well in the trial, I am grateful that he is happy, intelligent, communicative and thriving in every other sense. It's ok with me that he will remain part machine (I am resisting the temptation to make a Battlestar Galactica reference here). I have so much to be thankful for.