Remember, this is a bill that already has bipartisan support. It will help towards treatment and a cure for SMA, and perhaps a treatment for SMARD as well. Please take just a few moments to help garner support for the Act by contacting your reps!
What you might like to mention when you email/call:
- SMA is the number one genetic killer of children under 2
- One in 40 people carry the gene that causes SMA, making it very common
- The NIH chose SMA as one of the diseases closest to treatment and cure (we are talking years here, not decades!!!)
- The SMA Treatment Acceleration Act may also benefit other neuromuscular diseases, such as Tay-Sachs, Duchenne Muscular Dystrophy, and (maybe--cross fingers!!!) SMARD (Dakin's condition)