When I started The Daily Dakin, I did so in hopes of being able to be helpful to others in similar positions to ours. I hoped to be able to be somewhere that newly diagnosed SMARD families could find and connect--something we had a hard time doing when Dakin was diagnosed. I wanted to offer them friendship and fellowship, or a shoulder to cry on.
While I feel that aim has been, and is, largely being accomplished, this blog has become something else to me as well. It's become a companion on our journey with Dakin and his extraordinary-ness. It's become a journal, a place for me to record the bits and pieces of our life and the joy he brings us. It has brought me a lot of peace.
So I apologize if things get repetitive sometimes. I just feel a need to write everything down. I know some of the things I write about seem so silly--going on a walk, eating out. And it may be silly, but these are huge things to us, and bits of the mosaic that make up our lives. I want all those things recorded. Forgive me the repetitiveness.
Anyhoo...that being said, I wanted to report on our trip to Dallas the other day. It was Dakin's last RSV shot, and he cried from the moment we rolled into the office. Not fun. He looked at me like I had betrayed him...
It's done, though. We probably won't get another one.
After, we had lunch at Ziziki's, a Greek restaurant. I ran in first and explained the situation, and the hostess helped me wipe down the table. They were so nice to us...I love when they do that. They brought Dakin some crayons and a kids' menu, and he was happy as a clam while we waited. Our day nurse Jane had the great idea of bringing one of his books, and so while we ate, he looked at his book and nibbled on pita.