We had the most wonderful day today! We got to have lunch with Gwendolyn and her wonderful parents, Bill and Victoria. I'm sure most of you know Gwendolyn and her family, but for those of you who don't, Gwendolyn is a beautiful little girl who has Type 1 SMA. Her family, always thinking of new ways to raise awareness of SMA and the Treatment Acceleration Act, made this road trip not only a vacation, but an opportunity to raise money for SMA. And they stopped here!! It was wonderful to get to meet them in person--in the few months I have "known" them I have come to feel quite a kinship with them. It was truly a life changing experience to meet Gwendolyn in person. She is angelic. If you haven't, please check out her blog and donate to the Sponsor-A-Mile to End SMA--10.00 per mile on this trip. Thanks so much, guys, for taking the time to visit us! We wish you were closer!
Dakin would NOT cooperate with the camera...Gwendolyn looks perfect, though. If you look closely, she is wearing a little purple butterfly clip--Victoria said she wore it for Dakin, since they are both enamored with purple butterflies.
All of us, in the 100+ degree weather...I grabbed this next shot after they had gone back to their RV. I thought the billboard behind where the RV was parked was beautifully appropriate--it says "The Power of Hope." In all the interaction I have had with the Strongs, they have always emphasized hope in the fight against SMA: hope that someday it will be cured. Those who have donated to the Sponsor-A-Mile to End SMA believe in this power. Ultimately, that is what this wonderful family represents to me: the power of hope. They, through the work they have done with the petition (and everything else), have given so many SMA families hope, and that is a gift I can never thank them enough for. I'm probably not expressing myself well, but it just struck me as I was getting in the car how appropriate it was that they were parked in front of this billboard--on a stop on their journey sponsored by hope.