And I don't beg. You may have heard that the Gwendolyn Strong Foundation has a chance to win ONE MILLION DOLLARS from Chase bank. GSF has pledged to use the full one million to cure SMA and to raise awareness. With research being SO CLOSE to a CURE, they have to win. They just have to... if SMA research could at some time be approved for all SMA-family disease, it could be a cure for Dakin.
Imagine...my sweet boy walking. Or even just breathing without the help of a machine. No one in the US is researching Dakin's disease, so this is, literally, our only hope. Please, take a few minutes, beginning January 15th, to give my son a chance.
A chance to play in the rain without worrying about a ventilator, a chance to dance at prom, a chance to play kickball or jump in autumn leaves.
All you have to do is vote for the Gwendolyn Strong Foundation on the Chase Community Giving page on Facebook, starting on January 15th. You have 5 votes to end this killer forever.
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I have accepted much with Dakin's condition--he will never walk, never go snorkeling...so many things I have learned to have to be ok with. But this contest gives me an opportunity to really hope--that's not something I get to do often. Help us out. Don't forget to vote and tell everyone you know. Thanks.