You may have heard, but the Gwendolyn Strong Foundation did it. Yep, they stuck it out in 6th place to win 100,000 dollars to help cure SMA. I am in awe of what I watched Gwendolyn's family--and indeed the SMA community at large--accomplish in one week. 52,000 people came together to help cure this. 52,000 people--celebrites, singers, a major TV producer, parents, friends and family united to give hope to children who have little.
It was amazing to watch. A true miracle. 52,000 people who believe in hope.
I know I have talked about this on multiple occasions, but I am feeling it very strongly tonight. I got to thinking about how much that hope means to me. I used to see hope as hope for something I wanted for Christmas, or hope that it wouldn't rain. It's so much more now.
It's a lifeline.
Without that hope, I'm not sure how well I'd be handling Dakin's condition. I mean, I am not living in a place where I have rose-colored glasses on about the reality of Dakin's condition. I get it. I know it. I know what could happen. I know that no one is even looking into treatment for his condition, at least in the US. But I also know that if something could be developed for SMA, there is a serious possibility it could help SMARD as well. And as thin and distant of a hope that that is, it is hope all the same.
So tonight, I have hope. And I am grateful to those who helped provide it for me...the Strongs, and all 52,000-ish people who chose to believe too.
Thank you. It means more than I could ever say.