From Vent Clinic! Yep, another marvelous vent clinic trip. As I've said before, I love going to vent clinic because the doctors usually only have good things to say. Today, no exception. Blood gases were marvelous, x-ray marvelous, weight gain not marvelous but sufficient. He gained 4 grams a day--the goal was 5-6, and since they want him on the skinny side anyhow, they were happy.
They also said we could drop his overnight CPT treatment, and...they said we could try some off-the-vent trials. I tried this a few months ago, and the longest he could go was 30 seconds. I would be perfectly happy if he could just go two minutes off the vent--that would be enough to let him run out and get the mail, or look at the sunset, or if we had to transport him quickly in an emergency situation. We'll give it a try...if Dakin doesn't do well, then we won't do it.
Anyhoo, all in all everything was great. Dr. C said he was impressed, which means a lot from a doctor, you know?
AND, we were given the green light to do some pretty exciting (for us anyway) things. More about that later!!