It has been a sorrowful weekend. Two sweet little ones finished their battles with SMA, and another should have celebrated his first birthday. In light of all this, I haven't been feeling much like writing, but I wanted to do something and so I thought a silly picture might cheer us up. I love this picture--it was taken shortly before Dakin "crashed," if I may borrow an expression from Victoria.
There was a really good point to this weekend, though--as many of you already know, President Obama lifted some of the restrictions on stem cell research. I feel he has put some very responsible stipulations on how those stem cells are obtained, and so I am feeling pretty good about it. Hopefully we can get this stuff going and get some positive results for our SMA kiddos. For Dakin's particular type of SMA, they have already done a successful stem cell transplant on a mouse in Italy, (of course, Italy--as far as we are aware no one in the US is researching Dakin's type) so that's a step, anyhow.
Kind of a ramble. Sorry. But enjoy the picture anyway.
10 comments:
what a precious face!!!
Such an adorable picture
Do I really say that? :)
Love that fun photo!
You are an amazing mother to find the joy in your journey. Thank you for inspiring me always.
My name is Rebecah and I've been reading your blog via The Coleman's blog. My little guy also has SMA-type I. I would love to try to keep in touch. our blog is ogdenoriginals.blogspot.com
Aw he is SO cute!!
Cute pictures!! Devon I love your attitude!! You are so inspiring to me how you continue plugging away even when life is rough!! You are so great and I thank you for that example!!
Just saw your comment about doing piggies in Dakin's hair and I am sure he would continue to look darling as always. You have to see these pictures of Jonas -- so funny -- http://coleman2family.blogspot.com/2009/01/time-for-new-dowhats-your-vote.html
That is a sweet face! We did have so much fun! I think that Disney tries to accommodate kids in need as much as they can. For right now I still hold Jonas. I know that for certain rides they do have special carts or whatever that can take wheelchairs. Like Small World has a special boat. I think it would be really fun for you to go. If you do, let me know and I will tell you all that we know. There are special passes and such.
Big hugs!
That picture melts my heart! What a precious face!
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